Monday, May 11, 2009

Tomorrow, Tomorrow, I Love Ya Tomorrow

As of this writing, Ambrose has been off CPAP for 34 hours.  The plan is to get out of Dodge tomorrow. Yeah!  He is doing great!  I am trying to tie up loose ends.  I got all of his new scripts into the pharmacy.  He had an orthopedic consult, for suggestions re: foot splints, scholeosis. Fine tuning diet, skin rash issues, ...
We have traded our wretching, coughing, hacking neighbor for a horrible teenage boy who frequently has loud intimidating swearing outbursts about getting the F out of here and calling the nurse "you  F----in' idiot."  It is really bothering me.
Ambrose is still having some seizures, but less than before.  It seems to me he does better with slightly lower ketones than the 4+ that is the goal.  I'm not sure yet how to control this.
Can't wait to get home.

2 comments:

  1. So glad he's going home and you're getting out of Dodge. Happy Belated Mother's Day to an incredible mama!!! xoxo Jill

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