HOME

Just wanted to let you know that we are home. Getting out of there is always frustrating. Lots of waiting around for paperwork when you are very anxious to just get out of there.   Ambrose is still having lots of secretions and was up ALL night needing lots of suctioning, so needless to say I have not gotten any sleep either.  He had lots of seizures yesterday, better today. We are also having some issues with our O2 system. I feel I have soooo much to catch up on.  I am glad to be home but a little overwhelmed.  We also have 5 upcoming appointments set up in the next 6 weeks. Ugh!