Sunday, November 28, 2010

Happy Thanksgiving!

Little Ambrose was sick again a couple of weeks ago. He had fevers up to 104.5. He started another course of Bactrim, complicated by a pharmacy error causing him to get too big of a dose, which resulted in some bleeding in his stomach. GRRRRRRRR!!! A couple of days later he was wheezing and very uncomfortable. He was put on a 5 day course of steroids. Within 12 hrs he was doing so much better. Again he was able to recouperate at home. Yeah!
I have enjoyed a week off of school in which I got to spend much more time with Brosie and we all enjoyed a wonderful visit from our dear friend Lisa. She drove many hours to cuddle Ambrose. As you can see, he has had a haircut since his cheeseburger pics.
I hope you have had the pleasure of watching the videos in the previous post. If not, you must do it now.

Thursday, November 25, 2010

Wonderful videos of Brosie at play

Please note the yellow submarine jamies.

Tom's Diner Part 2, 11/24/10

Hey I just noticed we are now at well over 10,000 hits. Yeah! Thanks everyone for your interest in my darling boy!

Friday, November 5, 2010

Cheeseburger in Paradise

Ambrose dressed as a cheeseburger for Halloween. I cannot take credit for making the costume, it is from Old Navy.

Wow! November already!

I cannot believe I didn't make a single post in all of October. Pathetic! Yes, I am very busy, but that is unacceptable!
My darling Ambrose is doing well. He is up to his old tricks of staying up all night, being cuddly, looking cute, a kicking like a madman. He is using his hands a bit more.
One exciting things is that I was contacted by a recent graduate of Dartmouth Medical School. She met Ambrose and I last year while she was working with Ambrose's neurologist. She is now writing a paper about Taybi-Linder syndrome, focusing on the neuroogical aspects. It will include a case study of Sophia and Ambrose. I am very excited as NO ONE has been doing anything about this syndrome. It is so unknown and it seems that no one is interested since the geneticist who it is named for retired many years ago. She asked me for pictures and I have sent several that show their unique features but also show them to be human and special and not just clinical case studies. I hope that comes across some how in this paper.
I still can't figure out how to get more that 5 pictures to post, so I will add another post.