Thursday, January 15, 2015

Ambrose's Stables and Horse Pedigree Information

Since the last update, there has been a furry flurry of activity at Ambrose's Stables.  He was so excited after his visit with the horses Jeremiah and Modock that he decided to adopt several rare and special little horses.  They constantly watch over him and he is always happy to reach out and find one nuzzling his hand.

Surrounded by hoofs

So lets me introduce the horses in no partucular order of importance or heirarchy:

This is Modock.  He was sired by a much larger horse who coincidentally was also named Modock.  He can gallop at full stride but is most comfortable just sitting down and taking it easy.  Modock won the Triple-Crown years ago but nobody can really remember what year, although we do have the Blue-Ribbon.  Modock likes Eggs-Benedict for breakfast and has taken to long afternoon naps where he dreams of frolicking in a grassy field and rolling-in-the-hay.

Then there is Sergio.  Med-Sergio is his Pedigree name.  A dashing little pony who is handsome and smart and has a mane that just won't quit!   Always by Ambrose's side he is often handling such mundane tasks such as wiping Ambrose's nose.  Never a complainer, he always gets extra oats but we know that he sometimes hides his oats and gives them to other horses who are hungry.


Little Bright Eyes is a very, very old horse whose grandfather came over to America with Desoto when he explored America in the 1500's.  His impressive lineage includes the horse that the Roman Army modeled the Trojan Horse from. If you look closely you can see the resemblance.     His name is deceptive because his eyes are actually very dark.  Little Bright Eyes however, despite his advanced age, is very stout and vigilant, and can do anything a younger horse can do and do it with more experience and more confidence.  But then he too needs an afternoon nap.  Little Bright Eyes is fond of Ambrose and spend alot of time watching over him when the other horses are in the stalls or eating hay or grazing on the carpet.  He is loyal and determined and he loves Ambrose and would do anything for him.
Little Bright Eyes

And last but not least Blackie.  Blackie is a horse imported from the Himalayes.  Horses from his region work closely with sherpas to drag trust-fund adventurers to their death at high altitude trying to reach remote mountain peaks. The horses were famous for being able to hold their breaths for long periods of time, and to be able to "ski" back down the mountains with the bodies of the frozen climbers strapped on their backs.   Blackie was sired by Whitey, the first horse to climb Kilamanjaro.  The biggest of Ambrose's horses,  all of the other horses thing he is the most gentle, and so does Ambrose.

So we are one big horsey-family.

The family thay nays together stays together.

So that is the biographical and pedigree information I think everyone needs, so if you are looking for a sire to your next foal, look no further than Ambrose's Stables.

By James Brown
Ambrose's Daddy

Saturday, April 26, 2014


Ambrose recently made two new friends: Jeremiah and Modock.  These are horses owned
by my friend Janie.  He got to pet them and feed them carrots.  Next time he will try sitting on them and maybe riding a little.  It was very exciting.

Monday, January 27, 2014

Ambrose turns SIX!!!!!!

On January 19, 2014, darling Ambrose turned 6 years old!!!!!!
We are overjoyed and extremely blessed that our little boy has made it this far and is still going strong!
James and I were both sick on his birthday and had to reschedule his birthday party.  His actual birthday was a pretty quiet affair, with us wearing masks to try to protect him.  It worked!  Amazingly Ambrose stayed well throughout our illnesses and his full day of hospital appointments a couple of days later.  He wore a mask that day.
His rescheduled party was yesterday and a great time was had by all.  Ambrose has a wonderful group of ladies who love him so much and have been great friends to us!
Charla Reardon was joined by my dear friend Jillian Starr in creating facebook pages to encourage people to send birthday cards to Ambrose.  We were so blessed and received 88 cards.  The most ever.  Our favorites are always the cards handmade by children.

Some of the wonderful handmade cards.

Thursday, December 5, 2013


The above photo represents a very scary and discouraging issue.   For the past 2 plus years, DHMC has been without a pediatric orthopedic surgeon.  Ambrose had been seeing the previous Dr annually, keeping tabs on his scoleosis and his multiple skeletal issues.  For the past couple of years I have been increasingly concerned that his curve seems to be getting worse.  None of his various specialists paid much attention.  However, recently, after ruling out other culprits, his pulmonologist  felt that his scoleosis may be the cause of his worsening respiratory issues.  When I heard they had finally found a new Ortho Dr., I was very excited for him to finally be seen. I was hopeful that he could perhaps try some kind of brace, but concerned that might restrict his lungs further.  
Well, I was very upset to learn that Ambrose's scoleosis is now measured at 90 degrees and considered severe and beyond repair.  A brace would not be an option for him because of his respiratory compromise and also he is beyond what the brace could do.  I already knew that I did not want to persue spinal surgery as I had been told by a PICU attending that he would never recommend it as he had seen kids like Ambrose do very poorly after such surgeries.  I also learned that it is highly unusual for someone as young and small as he is to have developed such severe scoleosis and that the hardware they use in these surgeries is actually to big for him.  So I was told "surgery isn't even an option."
His right lung (seen on the left above as image is reversed) is very squished.  His ribcage is twisted and sticks out in the back on his right side.  I asked the Dr to look back in the computer to compare it to an older image.  She found a chest xray from 3 years ago and measured the curve at 40 degrees.  So in the 3 years that no Dr was watching, his curve went from 40 to 90 degrees and is now "beyond repair."  It cannot be allowed to get any worse!!!  The only thing that this Dr. suggested was having a custom molded seat back made to prevent him from   curving any more than he already does when he is up against gravity.  We are looking into this now.   I am optimistic.

OK so I cheated a bit on Ambrose' Halloween costume.  I made this gnome costume a couple of years ago for him and he looked so darn cute in it.  Since his new diagnosis last year, following his whole exome study, I have wanted to modify this costume and make him : a  HUMAN GENOME

Of course he doesn't have a devilish bone in his body, but I couldn't resist.  He looks so darn cute!

Sunday, October 20, 2013


When I look into these eyes, my heart is filled with joy.  These are Ambrose's "big eyes".  Often we only see them for short periods of time, but this weekend we have seen them for hours at a time. 

Ambrose is often awake with his eyes closed or rolled back for long stretches of time.  When he has his "big eyes on" he is much more attentive to the world around him.  

                                                   He has been engaging and smiling alot.

This past weekend, we were special guests at a Make a Wish fundraising dinner.  I was asked to speak about what Make a Wish has meant to us.  I am too shy to speak in front of a room full of people.  My husband spoke and did a great job.  I agonized about my decision to bring Ambrose.  I know it would be meaningful for people to see this "wish kid", but I worry so much about exposing him to germs.
It turned out to be a great night which Ambrose really enjoyed.

They had asked if it was OK having Ambrose sit at the front table.  They wondered if it would be too loud for him.  I thought it would be fine since he is hearing impaired.  It turned out to be perfect.  He loved listening to the music and especially the Karaoke.  They had strings of lights up that he could see.

Our friend Winnie came.  She loves Ambrose and Ambrose loves her too.  Our boy had those big eyes on the whole night.  We were there almost 3 hours.  I can't recall the last time I saw him engaged with something for so long.  Words really can't express how much it fills my heart with joy to see him like this.

Sunday, September 22, 2013

Ambrose had a great summer.  He had many adventures.  Grandma and Grandpa visited.  He went camping (luxury camping).  We stayed in the Director's cabin at Green Mountain Camp.  He went to the Wellness in Windham festival where he got his face painted.  
He made several paintings which were were auctioned off to raise money for his father's Mission trip to Kenya this fall.  He went for many walks, lost more teeth and got new ones, and had several doctor's appointments, of course.  
We have tried a variety of different respiratory medications.  We are currently doing chest PT am and pm followed by Advair.  He does seem to be having fewer episodes of desaturations and is using a bit less O2 overall.  We are also trialing him off of Synthroid.  
Ambrose is the light of our lives and has been his usual wonderful, snuggly, loving self and we are so grateful for every moment with him!