Thursday, May 28, 2009
I have spent an awful lot of time in this hospital. More than anyone person ought to in several lifetimes. I have had good experiences and bad ones, much more good than bad. I have seen people go above and beyond in their jobs, and some that have not. But this is not about this hospital or the staff, this is about a wonderful and very brave little boy. If anyone is reading for any reason other than out of love for Ambrose, you are not welcome here. It is very difficult watching your beloved child go through serious medical problems and having to depend so heavily on others. What I can and do do is to be here as much as possible to comfort him, to advocate for him, to make sure all of the details are passed along properly amongst the constantly changing staff and to make sure he gets the care that he deserves. I do not need the extra stress of feeling someone is reading over my shoulder. That I cannot express myself freely. That I must censor myself.