Thursday, May 7, 2009

Day 11

Slowly weening...Today Ambrose is having two 7 hour stretches off CPAP.  He must be completely off for 24-48 hrs before he can go home.
I requested a physical therapy consult for him a few days ago.  They have been great. A PT & OT have been alternating visits for about an hour a day. Today she brought a big mat and exercise ball and we got him down on the floor to play.  I think he really enjoyed it. They've also brought him a tumbleform chair and some toys and leave everything with us to use while he's here.  So glad I asked.
Ambrose has achieved ketosis. He is still having some seizures, but a lot less than usual.  His blood sugars have been in the low 50s, so they had to add a little protein powder to his ketocal.
Today Ambrose's friend Ben got to go home. Yeah Ben!

2 comments:

  1. So glad that today had so many positives, and hoping Ambrose continues to improve so he can go home, too!

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  2. I knew he was a strong boy! Way to go. You will all be home in no time.
    Glad to hear his getting his "workouts" in with the OT and PT!
    Best wishes for a speedy recovery.
    Max

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