After a night of virtually no sleep, Ambrose coughing with nearly every breath and needing constant suction, then developing a fever of 102.8, I took him in to the ER. I rode with him in the ambulance to the PICU.
We've got to figure this out!
He hasn't needed extra O2 this time and until the fever I thought it was the trach issues.
Well they took lots of cultures, put in an IV (Got it on the first time-Yeah! The nurse even managed to save it despite the fact that Ambrose had a seizure before he was finished-excellent work!)
I asked for the ENT (trach doc) and derm consults. The ENT ordered the longer custom trach for him (which may take up to a week to get here). They are putting him on oral anti-fungal med for the rashes that won't clear. It's a little scary because it can actually cause liver problems and interfere with seizure meds. He is back on CPAP, which seems to agree with him. His chest x-ray looks lousy again.
I just returned to work yesterday. Four different residents told me they love me, which more than makes up for the one trying to hit and kick me. I missed them (and my excellent coworkers.) I hated to call and say I'll be gone again.