Monday, June 15, 2009

Happy Monday

Day 6 at home and still going strong.  Still having lots of secretions and crackles but he does seem more comfortable and active than when he was in the hospital.  He is spending a few hours off CPAP each day. His diaper rash is gone - Yeah!   He has gained a few ounces and had fewer seizures this weekend but was awakened 4 times by them this early am, followed by frequent suctioning.  
We had our first visit by a consultant from the Vermont Center for the Deaf and Hard of Hearing.  He had lots of great suggestions for optimizing Ambrose's hearing and dealing with hearing aid feedback.  He will start coming every 2 weeks.  
He will be getting his teeth filed on Wednesday and getting his new custom size trach on Thursday.


  1. Hi Rebecca, everything sounds like it is going well. Great job on that diaper rash! Im sure it is from your impeccable care, you are an awsome mom! Im so glad to hear he is doing well at home.

  2. Wow! Such exciting stuff. Soooooo happy you are both home and back to the normal routine. Much love, -cad.