Saturday, July 4, 2009

Happy 4th of July!

It's been a quiet week - lots of playing, NO appointments!  
Ambrose actually slept all night, for 11 hours the other night. Then, last night he was up from 3:30am to 9am.  There is just no rhyme or reason.
He has been up on his oxygen, which concerns me. His oxygen system is pretty convoluted with liquid oxygen and compressed air run through a heated chamber with sterile water to provide humidification and a bag of air, which is part of the CPAP system, It then travels through a hose with heater wire inside it to his trach.  There are many places there could be a leak or malfunction. But then when I switch him to his travel tank to go to the playroom, he is on his normal amount, which is reassuring.  Not sure what's going on there.
Ambrose will probably be sleeping till I leave for work.  Then he will wonder where Mommy is.
Ambrose has been making a lot of vocalizations.  He has a very sweet voice.  The CPAP helps with that by forcing him to exhale through his mouth or nose, forcing air out over his vocal cords.  He usually breathes in and out through his trach, below his vocal cords and therefore rarely makes any noise.
Gotta go. Seizure.

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