|I just made this shirt for Brosie.|
Ambrose just had another ultrasound of his kidneys and appointment with the nephrologist to follow up on his renal calcification. The ultrasound did not look any better and was possibly worse. There is a lot of calcium building up in his kidneys. The diuretics do not seem to be helping him to clear it, although the doctor thinks it might be much worse without them. He wants us to increase Ambrose's free water by 250 mls a day. I am gradually working up to this amount. Also, his potassium is again extremely low at 2.8 (normal range is 3.5-5.0) so his Potassium supplement is increased to 4 times a day. The good news is that his urine calcium is the lowest since they discovered this problem well over a year ago. It was 0.58 (normal is 0.2; his last one was 1.2)
His neurologist and GI doctor were both quite pleased with how he is doing. The neurologist commented, "You're taking such great care of him."