Well it has been a long haul. He started to get better, then had some more fevers. He did not need to be on the vent during the day, but he still had such copius secretions. Ambrose was sick for about a month but was able to beat this thing at home! It was likely a virus. but two different antibiotics were tried "just in case", which reaked havoc on his system. He is not quite back to his baseline O2 but he is so much better.
My name is Ambrose James Brown. I am a very special little boy. My late sister, and personal guardian angel, Sophia and I have CDG-1d, which causes us to have many disabilities but it does not define who we are. I am sweet, loveable, adventurous, active, cuddly, strong and brave, and am the apple of my parent's eyes.