Tuesday, September 29, 2009


Life has been quite busy lately and I have been meaning to post so many times. I hope you haven't all given up on me.
My darling boy is doing well! He is now almost 21 pounds!
He started taking prevacid a month ago to cut down on stomach acid, which has significantly improved the reflux problem It only happens every once in a while now. He had another increase in his Zonisamide (following an increase in seizures) which has also helped with the seizure frequency. He averages about 3 a day now, which we can live with.
He had his MMR and varicella (chicken pox) and Hepatitis A vaccines which caused him several days of fevers (which are always accompanied by extra seizures). Frustrating because you know it is probably the vaccines but cant help but worry if he is actually getting sick.
He has been wearing his "Boots" (AFO foot splints) and knee immobilizers as you can see in the pictures. He doesn't mind the boots and is usually a good sport about the knee immobilizers. He only wears them for a 30-45min a couple of times a day. He does seem to be able to straighten his legs a little bit more.
Ambrose and Mommy got our flu shots last week and are anxious to get the swine flu shots as soon as they are available.
Don't forget to get yours!
We have sold our house and are closing on the 21st of October, so we have a lot of work to do. We are moving locally and downsizing which will be a big help financially. I'm just trying to figure out where I'll put all of Brosie's stuff. The boy requires a lot. His monthly medically supply order alone takes up a lot of space. Then there's 2 lg. liquid O2 cylinders, 2 huge "M" tanks, several small travel tanks, more equipment, TOYS, TOYS, special seating, exercise/physical therapy stuff, crib,...
I am taking a nutrition class this semester and applying to Vermont Technical College for next year. Wish me luck.
Please keep Ambrose and Sophia's friend Ben in your prayers. He is in the PICU again. There is a link to his blog in the sidebar.
Sorry it has been so long. Hope you all have a wonderful day.


  1. Wow. So much news. All sounds great. So glad to learn you were able to sell the house in this sluggish market. Yay!

    Cannot believe how big Brosie is getting. Love the feetie parts of his boots which totally look like super cool Tevas. Such a Vermont kid!

    No need to wish you luck with school because you have plenty of smarts and talent to see you through. But since you asked, I will oblige and wish you luck.

    Thanks for the (eagerly anticipated and watched-for) update. : )

  2. Thanks for the shout out my friend. :) I can't believe how big he is getting. Keep him away from all germs....I'm thinking this winter is gonna be a nasty one. Thanks for updating!