Thursday, April 30, 2009

Two steps forward, one step back. Or is it one step forward, two steps back?

Well it's been almost a day and a half with no fevers. He isn't coughing as much. Also, they took that nasty scalp IV out, unfortunately scalping him in the process. (Despite some adhesive remover it ripped out about 50 precious little hairs.) He came down some on his O2 last night. Then they tried taking him off the CPAP and within an hour or two he was satting 68 and had some collapse on the left side despite being on 60% O2.  So, needless to say he is back on CPAP.  He does seem more like himself to me. More alert and fiesty.
They told me they definately won't be going ahead with starting the ketogenic diet next week. They need to wait until he is 100% as it can lower his immunity. So it'll be back to Seizureville, population Ambrose.
Stay tuned.

1 comment:

  1. We MUST take more pictures tomorrow so that you can post them to his blog. I'm glad that he is feeling a little more like himself! HUGS!