His birthdays are very special as most children with Taybi-Linder Syndrome die before their 1st birthday. Sophia almost made it to her 4th birthday. She was the 5th oldest child with this syndrome (of the 34 reported cases throughout the world since it was identified in 1968). The oldest was 6.
We are having a birthday party for him at 2 p.m. on Sunday, Jan. 17. Let us know if you'd like to come.