This afternoon while Brosie was napping I tried taking off his oxygen as he was satting 100 on just a whiff of O2. He satted 93-96 for 45 minutes. This is quite remarkable as he is totally O2 dependent. When he woke up he needed to go back on.
He truly is amazing isn't he? Rockin' those little lungs of his. You go Brosie! And thanks for the pic Reb. I really love seeing that boy's face. (Although my monitor gets a bit gookey when I smooch his cheek.)
My name is Ambrose James Brown. I am a very special little boy. My late sister, and personal guardian angel, Sophia and I have CDG-1d, which causes us to have many disabilities but it does not define who we are. I am sweet, loveable, adventurous, active, cuddly, strong and brave, and am the apple of my parent's eyes.
He truly is amazing isn't he? Rockin' those little lungs of his. You go Brosie! And thanks for the pic Reb. I really love seeing that boy's face. (Although my monitor gets a bit gookey when I smooch his cheek.)
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