It's 4:15 pm. I had trouble sleeping thinking of ?s I wanted to ask the ENT Dr. who was supposed to come yesterday. I came in at 8:00 a.m. because I didn't want to miss him. I am still waiting.
The most annoying thing is I he was in the PICU several hours ago to see another patient.
My name is Ambrose James Brown. I am a very special little boy. My late sister, and personal guardian angel, Sophia and I have CDG-1d, which causes us to have many disabilities but it does not define who we are. I am sweet, loveable, adventurous, active, cuddly, strong and brave, and am the apple of my parent's eyes.
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