tag:blogger.com,1999:blog-203617183106568370.post6473037433523134314..comments2023-12-13T02:25:33.447-05:00Comments on The Amazing Ambrose: Ambrose's Stables and Horse Pedigree InformationAmbrosehttp://www.blogger.com/profile/18393226510355878196noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-203617183106568370.post-79254998259056492102015-01-31T12:05:43.561-05:002015-01-31T12:05:43.561-05:00Hello. I would be glad to talk with you more. My ...Hello. I would be glad to talk with you more. My email is sophia.ambrose@gmail.com.<br />Unfortunately there are no facebook groups for MOPD. I did connect with one person a few years ago through some website. I will try to find that for you. We did not keep in touch because it was after I found out he did not actually have MOPD. <br />Was your child diagnosed genetically?<br />There are many subtypes of CDG and we have a rare one and seem to have many more issues than the other handful of cases.<br />Looking forward to speaking with you further.<br />Sincerely, <br />RebeccaAmbrosehttps://www.blogger.com/profile/18393226510355878196noreply@blogger.comtag:blogger.com,1999:blog-203617183106568370.post-33146081634907921772015-01-27T22:05:18.433-05:002015-01-27T22:05:18.433-05:00We just got a diagnosis of MOPD type 1 today for o...We just got a diagnosis of MOPD type 1 today for our 11 month old daughter, and in searching I found your family's blog. I hadn't heard of MOPD or CDG before today, and I am eager to learn more, especially since our daughter has tracheal malformations as well. <br />In one of your posts I saw you had mentioned Facebook groups, is there any way you could direct me to to one where we could connect with families like yours? <br />So inspiring to see that your little one is doing so well! doctordudehttps://www.blogger.com/profile/08246339620339606020noreply@blogger.com